Just returning from the excellent workshop……..
Realising European Reference Networks for Rare Diseases: a preparatory workshop for the rare disease field
……….organised by EUCERD Joint Action and the European Commission
When I noticed the Scottish presence in Brussels
Beth, Kasia, Rob, Ella and Jenny
Who let Rob out with those knees!
(note to oneself: why am I working and they are out sunning themselves….?)
Somatic mosaic skeletal overgrowth disorders
Matthew Warman (Boston, USA)
Achondroplasia – new therapy
Laurence Legeai-Mallet (Paris France)
Outi Mäkitie (Stockholm, Sweden)