Cure Black Bone Disease: Time Is Running Out

A message From Dr Nick Sireau, Chairman and CEO of the AKU Society


Dear friends,

Please could you help with our new fundraising campaign to develop a cure for Black Bone Disease, the rare genetic disease affecting my two boys: http://igg.me/at/curebbd.

I’d be very grateful if you could contribute and share with friends, family and colleagues please. We’re 78% of the way to our target, with 10 days left to raise the remaining 22%, so please contribute generously!

Any advice on how to improve the campaign would also be wonderful.

Thanks again for all your help. It’s very appreciated.

Kind regards,
Nick


Please support our fundraising campaign.

Dr Nicolas Sireau
Chairman and CEO
AKU Society
AdviceSpace, 66 Devonshire Road,
Cambridge CB1 2BL, UK
http://www.akusociety.org
Email nick@akusociety.org

Twitter: www.twitter.com/AKUSociety
Facebook: http://facebook.com/akusociety
Sign up to the AKU Society e-newsletter

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s