Research dissemination


Whilst peer reviewed and open access publications in high quality journals is the main forum for disseminating our rare disease research, there are also other approaches that we will take.

These include:-

  1. On-line publication of our conference abstracts and posters here.
  2. Regular ‘research updates’ that briefly highlight some of new findings of interest.
  3. Public engagement activities and dissemination to all stake holders.
  4. Social media.

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